Hello friends. I know that many people have asked for an update on me. I have not been able to blog because it takes so much effort and energy, it is hard for me to see the computer screen clearly and to type and to pull together my thoughts (chemo brain is a real thing). Shannon is visiting this week so she is helping me write this post.
Right now, I have good days and bad days.
A good day is when I feel not so drugged up. I can get up and move around carefully with the help of my walker. Someone always follows close by just in case.
On bad days I want to sleep all day. And that’s about all I can do. :)
Today (Monday) was a little of both.
I have helpers that watch over me while Danny is at work. They are so sweet to me.
We still go to Stanford about twice a month to meet with my team of doctors or have procedures done. The cancer in my spinal fluid continues to be in remission. Happy Day! But we are still trying to fight the cancer in other parts of my body.
In June we had a family reunion near Zion National Park. A good friend lent us their RV to make the drive to Utah more comfortable for me. I even went on a few hikes (with my wheelchair). It was so nice to have all my children in one place. That was the best part of the reunion – having all my kids together.
Danny and I saw our favorite comedian, Brian Regan, perform in July. The laughter was much needed during a very stressful time.
Danny has been working all summer on our outdoor fireplace. The backyard is turning out to be a wonderful place. He has worked really hard on it. (more pictures in another post)
Not nearly as fun, but I’ve also been admitted to the hospital twice and visited urgent care once over the summer. We know for certain which hospitals we like and which ones to avoid.
Danny tries to get me out of the house most days so I can see the outside world – we’ll drive into town and grab milkshakes in the drive through, get my favorite egg drop soup at the chinese restaurant, visit grandkids & friends in town, or run quick errands where I’m happy to sit in the car.
I go to church when my body is up to it. It is first thing in the morning, and it takes my body a while to get going. I've been unable to attend the last few weeks and when I miss church, Sam comes over to give us the sacrament. He is a blessing to me. (As are all my children)
But for the most part I spend my 99% of my time at home, resting. Today my nurse visited and she said that naps are a good thing. So I guess I will listen to her. :)
The nut season is starting soon. Danny has a desk set up in our bedroom so he can work from home whenever possible.
Next week my cute niece will come live with us through the nut season to help me out and give Danny more peace of mind. We look forward to having her in our home.
I want to say thank you to everyone who has supported me. I couldn't do it without you. I may not reply to every text, comment, message . . . but I know you are there and I am thankful for you. It makes me cry just to think of everyone who takes time out of their life for me.
